We said no jargon didn’t we! It’s sometimes tricky to explain some of the detailed stuff without using medical terms – but we’ve provided some explanations. There’s everything you need to know about ‘coronary artery aneurysms’ on another page – Check it out here.
Maybe you don’t have all the low-down on when you were first ill. Why not show your parent, carer – or GP this site. Talk to them about your Kawasaki Disease experience and ask them to answer your questions.
If you’re in this group and you’re not receiving regular care, PLEASE don’t worry! The first thing to do is speak to your parents/carers and show them this information. Next, why not arrange to see your GP — and take your phone! Show them this website and in particular, this page. The information we include on My Societi is the LATEST recommendations for the car of patients with Kawasaki Disease. If your GP is unsure, they can contact us and we can speak to them. They can also see the latest guidelines on patient care from TOP medical Journal ‘Heart’ (which we helped produce!) – here: This is the current UK guidance for lifetime care for people who have had Kawasaki Disease. If, when you’ve seen your GP and you still have questions or concerns, please get in touch and we will help if we can.